Governor Signs Bill Expanding Alzheimer's Data and Reporting

New law requires state to study disease’s disproportionate impact on certain communities
September 24, 2018

Sacramento, CA – September 24, 2018 – Yesterday Governor Brown signed into law Senator Ben Hueso’s (D-San Diego) bill to make Alzheimer’s disease research in California more inclusive of at-risk and underrepresented populations. Senate Bill No. 1292 will require the Center for Health Communities to update the 2009 Alzheimer’s Disease Facts and Figures Report in California to quantify the burden of Alzheimer’s disease on African Americans, Asian-Pacific Islanders, Latinos and women, all of whom experience significantly higher disease prevalence rates.

Evidence from available studies shows that, as compared to white Americans, African Americans are two times more likely to have Alzheimer’s disease and related dementias, Latinos are 1.5 times more likely, and women are about two-thirds of the population affected. Despite their increased risk, these populations have been historically underrepresented in research.

“California is uniquely positioned to combat this inequity with increased data collection within its diverse communities,” said Senator Hueso. “By expanding research efforts to better understand why these groups are diagnosed at higher rates, the state will be better positioned to craft solutions specifically tailored to those most greatly affected.”

The number of Californians with Alzheimer’s disease has dramatically increased since the first report was released 10 years ago, and is projected to further increase by 34 percent between 2017 and 2025 alone. This will result in more deaths, unpaid family caregivers, and higher government spending under Medicare and Medicaid.

“This projected growth will place unprecedented demands on our healthcare system,” said Senator Hueso. “California must expand research of these at-risk groups so that we can determine what efforts may alleviate the human burden and economic costs of those affected.”

SB 1292 was co-sponsored by the Alzheimer’s Association and the Latino Coalition for a Healthy California.

Senator Hueso further explains the legislation in a video clip available here: